The “Standard of Care” for DID: What the Guidelines Actually Say

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The “Standard of Care” for DID: What the Guidelines Actually Say

Many people with DID are told that “the standard of care” says they need years of therapy, several times a week, in three phases. Those ideas come from one document: the Guidelines for Treating Dissociative Identity Disorder in Adults, Third Revision, published in 2011.

This page quotes the Guidelines’ own words, exactly as written, with the page number for each quote, so you can read for yourself what they say and what they don’t.

Before you read this

Ivory Garden shares this page for information only. We do not endorse these Guidelines or present them as the truth about DID or its treatment. We quote them so you can see exactly what they say, and research further on your own.

If you’ve just been diagnosed, or you’re looking for a therapist, reading this document can be frightening. Years of therapy, two or three times a week. It can sound like you’re being told you are very sick and your life has to go on hold.

That is not what it means for everyone.

  • The Guidelines describe one approach to treating DID: the phase-oriented approach, an idea that goes back to Pierre Janet in the late 1800s. It is not the only approach, and it is not the right fit, or even possible, for everyone.
  • Many people with DID work, raise families, go to school, and live full lives.
  • How long therapy takes, and how often, depends on you: how you are doing, what you want, and what your life and budget allow.
  • You are allowed to have your own goals for therapy, and to talk them over with your therapist.
  • Even the Guidelines themselves say they are not meant to be a required standard of care. That’s the first thing on this page.

First: is it really a “standard of care”?

In their own words, no. On page 117, the Guidelines say:

“The recommendations in the Guidelines are not intended to be construed as or to serve as a standard of clinical care. The practice recommendations reflect the state of the art in this field at the present time. The Guidelines are not designed to include all proper methods of care or to exclude other acceptable treatment interventions.” (p. 117)

In plain words: the Guidelines describe what a group of experts recommended in 2011. By their own statement, they are not meant to be a required standard, and they are not the only acceptable way to treat DID.

The three phases

The Guidelines describe treatment in three phases (p. 135):

“1. Establishing safety, stabilization, and symptom reduction;
2. Confronting, working through, and integrating traumatic memories; and
3. Identity integration and rehabilitation.” (p. 135)

The idea of treating in phases is much older than the Guidelines:

“As early as the late 19th century, Pierre Janet advocated a phase-oriented treatment for dissociative disorders.” (p. 135)

They also say that not everyone moves through all three:

“…some patients may continue in Phase 1 treatment for long periods of time…” (p. 141)

In plain words: Phase 1 is about safety and handling symptoms. Phase 2 is working with trauma memories. Phase 3 is bringing things together and building life going forward. Some people stay in Phase 1 for a long time.

How long is treatment?

“As with treatment for other patients with complex posttraumatic disorders, treatment for DID patients is generally long term, usually requiring years, not weeks or months.” (p. 145)

In plain words: the Guidelines expect treatment to usually take years. Notice the words “generally” and “usually.” It is a general expectation, not a rule for every person.

How often?

“The minimum frequency of sessions for most DID patients is once a week, with many experts in the field recommending twice or even three times a week if resources permit this.” (p. 145)
“Although the 45- to 50-min session remains the norm for most therapists…” (p. 146)

In plain words: at least once a week for most people, and more often only “if resources permit.” A regular session is about 45 to 50 minutes.

Money and insurance

The Guidelines mention money only a few times:

“…lack of financial resources for treatment…” (p. 133), listed as one reason some people do not reach final fusion.
“…external factors such as insurance and other financial resources…” (p. 145)
“Given the current constraints of third-party payers, most hospitalizations are brief…” (p. 148)

In plain words: the Guidelines recognize that money and insurance affect treatment. They do not say what insurance must pay for. Insurance companies set their own rules, so if you are told “insurance requires this,” it is fair to ask to see that rule in writing.

Is full integration the only goal?

“Integration is a broad, longitudinal process referring to all work on dissociated mental processes throughout treatment.” (p. 133)
“A desirable treatment outcome is a workable form of integration or harmony among alternate identities.” (p. 133)
“…a considerable number of DID patients will not be able to achieve final fusion…” (p. 133)
“…a more realistic long-term outcome for some patients may be a cooperative arrangement…” (p. 134)

In plain words: the Guidelines say a good outcome can be full fusion, or it can be parts working together in harmony. They say outright that many people will not reach final fusion.

What this means for you

  • The Guidelines are recommendations from 2011, not laws or requirements. By their own words, they are not meant to serve as a standard of care.
  • If a therapist or insurance company tells you “the standard says…,” you can ask which page, and read it yourself.
  • Your treatment can be shaped around you: how you’re doing, what you want, and what you can afford.
  • A newer version (a fourth revision) has been in the works for several years. When it is published, this page will be updated.

A note about theories

The therapies and theories about trauma and DID are ideas that researchers are still studying and arguing about. None of them are proven facts. What works for one person may not work for another. Please take the time to read about any therapy yourself, ask questions, and decide what feels right for you.

Citation

International Society for the Study of Trauma and Dissociation [Chu, J. A., Dell, P. F., Van der Hart, O., Cardeña, E., Barach, P. M., Somer, E., Loewenstein, R. J., Brand, B., Golston, J. C., Courtois, C. A., Bowman, E. S., Classen, C., Dorahy, M., Şar, V., Gelinas, D. J., Fine, C. G., Paulsen, S., Kluft, R. P., Dalenberg, C. J., Jacobson-Levy, M., Nijenhuis, E. R. S., Boon, S., Chefetz, R. A., Middleton, W., Ross, C. A., Howell, E., Goodwin, G., Coons, P. M., Frankel, A. S., Steele, K., Gold, S. N., Gast, U., Young, L. M., & Twombly, J.]. (2011). Guidelines for treating dissociative identity disorder in adults, third revision. Journal of Trauma & Dissociation, 12(2), 115–187.

Where to find it: The full Guidelines are free to read. Search for “Guidelines for Treating Dissociative Identity Disorder in Adults, Third Revision 2011.” They are published in the Journal of Trauma & Dissociation (volume 12, issue 2) and posted on the International Society for the Study of Trauma and Dissociation website, under Resources, “Adult Treatment Guidelines.” The first version of the Guidelines was adopted in 1994, with revisions in 1997, 2005, and 2011.

The quotes on this page are short excerpts, reproduced exactly as written, for the purpose of education and discussion.

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